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10/01/2007 |
               
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News & Links January 2007 Recovery from CFS- Fifty Personal Stories by Alex Barton Alex Barton is a former sufferer of CFS/ME. She has spent the last year collecting testimonies of recovery from CFS/ME and has published them in an Ebook, in order to give hope and encouragement to others. She is currently trying to get the book published in conventional form. The fact that many people can, and do, recover from ME/CFS is often overlooked and it is important to keep this fact in your sights if you are ill. The contributors to the book have recovered by varying means; there are several references to Dr. Smith, Mickel Therapy and Reverse Therapy. Whilst we do not feel we can comment on any of the specific recovery methods that are outside our field of experience, it does seem clear that some of the other therapies and recovery disciplines do have some important parallels with Dr Smith’s.. In particular the mind/body, psychoneuroimmunology approaches are getting results and a common thread involves being willing to face certain aspects of your own personality, which may have contributed to the development of the illness, and listening to your body. This seems to be a major step towards recovery, whichever method is used. We feel it is vital that these recovery stories reach as many people as possible to show that there is good reason to maintain a positive outlook. What is there for those still ill if they do not have HOPE? If you chose to purchase this Ebook, (279 pages) may we suggest you save it on your PC and print it off in small sections. Purchase on line at www.alexbarton.co.uk/cfsrecovery-stories.htm
8th February 2004 Chronic Fatigue Syndrome in Children - a Cross Sectional Survey A peer reviewed Study, by Dr. M.Patel, Dr.D.G. Smith, Dr.T.Chalder and Prof.Simon Wessely, showing the success of Dr.Smith's recovery method was published in the BJM publication, Archives of Diseases of Childhood, October 2003 edition, Vol.88 P.894-898. Follow this link to view a full copy. http://adc.bmjjournals.com
Dr Smith's own website which is rather more "in depth and technical" and which has previously been published at www.stantonm.addr.com has now been rewritten and republished. All new material can be found at www.me-cfs-treatment.com which in future will be his main site. (Webmaster 28/7/05))
The Report of the CFS/ME Working Group to the Government's Chief Medical Officer was published on the 11th January 2002. This can be found at: http://www.publications.doh.gov.uk/cmo/cfsmereport/index.htm from where it can be printed off together with "Annexes" to the document. It is a substantial report and those interested may find it easier to download it to their computers and read or refer to it at their leisure, rather than trying to take it all in whilst online.
We have included on the site an article entitled "Lets Knock the Stigma" reproduced from the Summer 2002 edition of the Get Well Club Newsletter. Click here to read the article
The
MEACH Trust
is a new
Charity formed to
“There is nowhere in the country that provides long-term specialised residential care for ME sufferers. Ordinary Nursing Homes cannot cater for the needs of people who experience heightened sensitivity to stress and external stimuli, who are allergic to a variety of chemicals and who cannot tolerate light or noise. In addition, sufferers’ ability to concentrate, to communicate, even to more, can vary dramatically from day to day, which increases significantly their need for specific understanding of the condition." The above is an extract from their brochure. Do have a look at their website at www.meach.org and support them if you can Get Well Club Comment: This is something that is much needed. Feedback from the Get Well Website reveals many people who would love to try Dr.Smith’s recovery regime but cannot because they live alone and are so isolated or surrounded by unsympathetic ‘friends’ that restricting their level of activity would mean they would need help to do shopping, cooking and other basic day to day things. What would, also, be useful is a nationwide ‘buddy’ system whereby someone in the early stages of recovery can have a mentor and guide to support them and, perhaps, do shopping and help in other ways until they are able to do these things for themselves.
Claridge House A Centre for Healing Rest and Renewal
We have recently heard about about Claridge House, a retreat
centre in Lingfield, Surrey which is run by the Quakers in association On looking at their website it looks an ideal place for a short countryside break. It is under the flightpath for nearby Gatwick Airport but we do know that planes are not very low at that point and are usually incoming. Also, on checking this out for ourselves, we do not believe that this aspect will be significantly intrusive. Full board works out at £50 per day although there is a midweek break package for only £98, out of season. Bursary help is available. All rooms have wash basins and drinks making facilities and there are four of these on the ground floor, two of which are specially equipped for disabled guests. There are two lounges as well as a quiet room. There is no television but there are activities and courses available if you should want them. The menu is vegetarian and special diets can be accommodated with prior notice. Check out their website on www.claridgehouse.quaker.eu.org/ or telephone 01342 832150.
"MIND-BODY HEALTH AND STRESS TOLERANCE" is the title of a recently published book by David Jameson. As a former CFS/ME patient who has now recovered, David has brought together much of the research that has been done into this illness and the result is this very interesting book. Not only does it outline how the illness develops as a result of stress and burnout, but it also carries very useful advice as to how one can prevent it recurring after recovery. More information about the book, and how to obtain a copy, can be found on David’s own website at www.mind-body-health.net
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